Association of lymphoma Patients
My name is Charles, I am 52 years old, I am Franco-Brazilian born and living in São Paulo, Brazil. I am currently in follow-up and remission after a treatment made during the year 2011 for a non-Hodkinien cell lymphoma of the stage 4 mantle here in São Paulo, at the hospital Sirio Lebanones with a protocol "French", under the coordination of Dr. R... , Hematologist also from Saint Louis Hospital in Paris. Without visible symptoms, it all started after a simple blood test of routine control. This showed a very high PSA level (13.0). I then consulted with a urologist who had me perform a prostate biopsy. The result of this review was negative, thus discarding prostate cancer. To explain the reason for inflammation of the prostate, it was requested a complementary analysis, immuno-histochemical, which gave the diagnosis of mantle lymphoma. The urologist then sends me to consult the hematologist. This one makes me pass a pet Scan and a bone marrow biopsy, which confirm the initial diagnosis and indicate that the marrow is affected... The treatment followed was that of a French protocol consisting of 6 cycles of chemotherapy, R-CHOP and R-Ptwi in alternation, spaced 3 weeks and an autografting of bone marrow. The first night after the diagnosis was announced was passed in front of the computer, on Google, in search of information and testimonials. One is certain to live an "injustice", especially me who lived a relatively healthy life, had long been aware of the need for a sustainable environment, which triais my garbage...!!! I found very useful the implantation of the catheter for infusions, blood, blood transfusion, stem cell collection... and it gave me no problem of maintenance. But because it was an external double-track because of a marrow transplant, he asked to be protected during the baths. I had a small allergic reaction (redness on the face, itching...) during the first cure but that was controlled by the injection of an anti allergic and the reduction of the flow of the perf. To other cures, I no longer had allergy reactions. About ten days after my first chemo, I lost my hair and got mowed, which is less annoying in a warm country like Brazil, although it was useful to cover the head to avoid thermal shocks with air conditioning. For the anecdote, "CHOP" in Brazilian also means a "draught beer"...!! The nausea effects have always been present in the aftermath of cures. Constipation too, and I had to take laxative syrups. To avoid dehydration, I drank a lot of coconut water, very common here in Brazil. At home, I performed several times a day to control my temperature, as if to reassure myself... but I never had a fever. I was able to avoid irritation of the mucous membrane of the mouth with a preventive treatment with laser made by a dentist during the Hospitalisat ions, and mouth baths after meals. Between almost every cure, the drop in neutrophil white blood cells makes the hematologist prescribe a bone marrow stimulant injected by a subcutaneous puncture. These injections sometimes caused pain at the hips and pelvis at night, which disappeared with the taking of paracetamol. I had to resort to blood transfusions several times because of anemia. I sometimes had to wear a mask to go out on the street.. The cures were followed according to the initial schedule, without delay. You get used to it, but also you have no choice.. ! Halfway through my protocol, I passed a control scanner. And then takes place the collection of stem cells in the blood. The blood taken goes through a device that only holds the stem cells and reinjects the other blood components into my body...! My cells are frozen until the day of the transplant. After the chemo cycles, I had to stay more than 3 weeks in a filtered air hospital room to perform bone marrow autografting, which begins with the receipt of a high dose of chemo and ends with the injection of stem cells Thawed. Isolation and side effects (nausea, diarrhea...) are difficult to bear, but this is the last step and it is a matter of consolidating the remission. Now, after crossing a six-month tunnel, my life resumes its normal course. My hair has repelled, the beard has taken a little more time to come back.. I was able to get on a plane and go to France. I was able to resume my hobby, as a oenophile, which is to teach the Brazilians the culture and the tasting of French wines. During my stay in the hospital, I was able to conclude the writing of a manual for my tasting classes... I follow up with control at the hematologist about every 3 months, with blood tests and toe Scan. The days before the Scanner are stressful, but it's like that... But it is true that my look at things and people has changed... I enjoy and enjoy more of every moment that passes... I create moments of happiness... I am pleased to have been able to benefit from a medical team in high-performance hematology but also human, not to mention nurses and caregivers. What a coincidence also as a Brazilian Franco to be cared for in a Brazilian hospital by a doctor Franco Brazilian passed by the hospital Saint Louis of Paris with a French protocol...!! Reminding myself of moments spent alone in front of my computer in search of information, testimonials and hope, I am sure that sites like the one of France lymphoma hope play a big role with the sick and their families. I hope that my testimony will give hope to others....
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